THE CHILDREN – UPDATE

Mary Ellen Turpel-Lafond is no longer B.C.Representative for Children and Youth in B.C. What a loss for the people and children of B.C.  The position has, not surprisingly, been given to a politician (1).

The care of The Children did become an election issue. The BC NDP and Greens have made promises, in their election platform, to help the children.  The BC Liberals don’t have anything specific to the children in care but have made promises (see below).  It is good that the children became an election issue.  BUT, this is only the first step.  Because, as we know, politicians will say anything to get elected and frequently afterwards, partially or totally ignore the promises.   SO, after the election the people and media, will have to hold the politicians accountable, make sure any changes are beneficial to the children, demand constant updates on the welfare of the children and keep demanding the truth so the children get the care they need.  The Children only have YOU, the people, to look after them.   As Stephen Gantz says: “If children in foster care are wards of the state, we’re all their parents”. (13)

Katie Hyslop, at TheTyee.ca, has written a series of articles on The Children in government care and youths at risk. Go to TheTyee.ca, enter, in the search box, Katie Hyslop to read these articles. Be prepared, some will just break your heart.

B.C. Minister of Children and Family Development Stephanie Cadieux had a complaint:

  1. “Shortly after the first article appeared, I received an email from a ministry spokesperson that challenged one statement in one article. The sentence in question describes “Michie,” a young woman who found, as we reported, ‘that all the supports she and her foster parents had been receiving from British Columbia’s Ministry of Children and Family Development disappeared’ on her 19th birthday. “(4) The government states that there are a range of supports. “Two programs top the ministry’s list of services they want you and youth leaving care to know about: Agreement with Young Adults, and the Youth Educational Assistance Fund.” (4)  ”But youth workers and the acting provincial Representative for Children and Youth interviewed by The Tyee emphasized there are barriers to accessing and benefiting from these supports that vulnerable youth can’t overcome.” (4)   Katie Hyslop also found that the programs had restrictions which eliminated many youth.  Even for those who could qualify the government had barriers; for example, you must be in rehab but there aren’t enough rehab spaces.  Or, the youth could qualify if they were in a life skills program but there is a long waiting list for this program. “So, yes: everything the ministry says is true: YEAF, AYA, and other programs do exist to maintain support for youth leaving Crown care at age 19. But our earlier reports were also accurate: many youth find those supports hard-to-impossible to access. None picks up automatically when youth age out of care; individuals must find and apply for each one separately. All impose some sort of qualifying restriction. And even when youth do qualify, actual help may not be ‘available.’” (4)  “Some are available only for former foster youth and not for others in distress (the wider focus of my reporting).“ (4)  Children’s representative Mary Ellen Turpel-Lafond called Agreements with Young Adults (AYA) a smokescreen that is not helping these vulnerable teens. (19)   This is a common tactic of the government – look at this great program we are offering, but if you look closely at the program you will see all the holes, all the barriers that prevent the targetted people from using the program.  I doubt programs will ever be ‘perfect” but some (many?) of the government programs are so badly designed/implemented that it looks like they were intended to fail all but a few. Is it a case of the government getting credit because they have a “program” without actually giving much (money saved to go into the pockets of “other people”)?

The government is also complaining that they are not getting credit for PROMISING to implement Grand Chief Ed John’s 85 recommendations and the “significant funding increase the ministry received under Budget 2017 to help improve outcomes for Indigenous families”. (2) Maybe that’s because they haven’t actually done anything yet except make promises.  Maybe they will get credit when the 85 recommendations are actually implemented and not, as so often happens, forgotten or only a few recommendations are implemented.  Maybe they will get credit when the money actually reaches the children and is not spent on meetings trying to decide how to spend the money (as has happened).  But, maybe before giving credit we need to ask why “so many children had to die and youth in care had to suffer neglect and abuse for the government to be shamed into acting finally on child protection services,” as pointed out by senior economist Iglika Ivanova of the BC Centre for Policy Alternatives.  Maybe, before giving credit, we need to ask why the Ministry of Children and Family Development budget will increase 10 per cent this fiscal year (an election year) only to be followed by two years of spending freezes; in other words, the government is giving and then taking away as the Ministry will have less money in future years because the funding won’t keep up with even the rate of inflation.  Maybe we have to ask why, after all these years of having children in government care, the system is still such as mess.  (20)

I am also concerned that Christy Clark has said that additional funding is being provided to address recommendations in Bob Plecas report. (7) Some of his recommendations, supporting recommendations made by Turpel-Lafond, I believe are good and I am glad that there will be money, hopefully to implement them.  But some of his recommendations, as identified in a prior post (Children Hurt, Dying in the Care of the Politicians, 2014/04/12), I believe will undermine, even more, the care of the children; in particular, eliminating the oversight function of the Representative of Children and Youth.  Will eliminating the oversight function be just a means of hiding what is happening to the children?

Katie Hyslop tried repeatedly for the past three years to get an interview with B.C. Children and Family Development Minister Stephanie Cadieux, including when she was preparing her series. (6)  She also tried to get an interview with Minister Terry Lake. (6)  She is still waiting. (6)  Cadieux did, however, send another email to criticise her series: “Ministry of Children and Family Development sent emails asking why I had not included additional details about education funds offered to youth aging out of care. Those funds are not available to all youth with care experience, do not provide mental health or addictions help, and are not substantial enough to cover household and school expenses on their own. (6)  Unfortunately, I have learned that this is another common tactic of the government.  They will respond if they think it makes them look good but will not answer questions that presumably would be incriminating. So, with the government, not answering a question, provides it’s own answer, they have something to hide.  But, as Katie Hyslop says:  “I’d really like to speak with either of them. More to the point, I think, B.C.’s citizens deserve to hear from them, outside of canned media events, on matters as important as the well-being of the province’s most vulnerable youth.” (6)  And, citizens do have a RIGHT to hear the truth about how the government and it’s programs are run, even if it doesn’t make the politicians look good; this is supposedly the people’s government with the people’s money paying for it.  The people have a RIGHT to know what is going on so they can decide if it is acceptable, and if something is not acceptable, the people can help find solutions.

Paul Willcocks article (9) also has some good suggestions.

“Linda Reid, now the Speaker, then the Liberal critic for children and families, demanded a needs-based budget. Figure out first how to meet the needs of children and families, and what that would cost. Build the budget around that (even if some hard choices might be needed). Instead, the Liberals have treated the ministry like any other, imposing arbitrary and damaging cuts or freezes.”

“Look for a party that doesn’t just promise more money, but a new model.” (9)

“Another simple test is the parties’ positions on aging out. The current policy of basically cutting kids adrift at 19 is destructive and costly. Parents know teens, especially teens who have often experienced difficult childhoods in care, are not magically ready at 19 to survive, let alone thrive, on their own. Look for a party that will increase that age, with phased support that lasts four or five more years, perhaps decreasing as the youths find their way. Polls have found broad public support for increasing the age at which youth lose supports.” (9)

Stephen Gantz has also suggested some good ideas, such as:

  • “Ensure youth have at least one adult in their life, family or not, whom they can rely on” and I believe he means even after exiting the system;
  • “If they leave care early, let them come back whenever they need to.”(13)

So, no matter which party “wins” the election, whenever the politicians say they are spending money on “fill in the blank” (but especially their own raise and putting money into the fake “prosperity fund” (3)), ask them if they have taken care of the children. Are the children living in a safe, stable home (10, 15, 16), is enough effort being put into finding them permanent homes, are there enough substance abuse beds (4, 12, 14, 16, 17), are there enough mental health services (11, 12, 15, 16), are there sufficient housing and other supports when they leave government “care” (dropping the youth at a homeless shelter should NOT be an option) (4, 13),  are there sufficient staff to adequately look after the children (9), have all the children leaving government had a complete, current “aging out” interview and plan (4), so the children/youth can leave government “care” as healthy individuals.  Or, to slightly rephrase Paul Willocks, will the government continue to have an underfunded, dysfunctional system that fails the children repeatedly, even when the need for help is obvious. (9)

 

  1. Bernard Richard, Office Representative of Children and Youth
  2. Minister’s statement on representative’s report – BC Ministry of Children and Youth, 2017-03-30
  3. 117 BC Liberal Falsehoods, Boondoggles, and Scandals: The Complete List – TheTyee.ca, 2017-04-10 – FALSEHOOD: No LNG Funds Funding LNG Prosperity Fund
  4. Ministry Says Supports ‘Available’ to Youth Exiting Province’s Care. How Available? – Katie Hyslop, 2017-02-06, TheTyee.ca
  5. Number of drug treatment beds for youth down 25% despite fentanyl crisis – Eric Rankin, 2016-09-27, CBC News
  6. Getting BC Ministers to Talk about Struggling Kids Proved Impossible – Katie Hyslop, 2017-02-06, TheTyee.ca
  7. Budget Shortchanges BC Kids And Youth, Say Critics – Katie Hyslop, 2017/02/22, TheTyee.ca
  8. Absentee caregiver was receiving $8K a month before teen’s suicide: report – Andrew Weichel, 2017-02-06, CTV
  9. It Didn’t Have to Happen is Way: Government Still Failing Vulnerable Youth – Paul Willcocks, 2017-02-10, TheTyee.ca
  10. British Columbia Children and Youth In Care At Risk Of Sexualized Violence – RCY Report – Office of the Representative For Children And Youth – 2016-10-04
  11. Long Waits For Mental Health Services Persist Despite Tragic Death Of First Nations Teen – Office of the Representative For Children and Youth, 2016-08-08
  12. For Some Kamloops Youth, It’s Easier to Get High than to Get Help – Katie Hyslop, 2017-01-23, TheTyee.ca
  13. Shutting Down the ‘Pipeline’ from Foster Care to Homelessness – Katie Hyslop, 2015-09-15, TheTyee.ca
  14. Number of drug treatment beds for youth down 25% despite fentanyl crisis – Eric Rankin, 2016-09-27, CBC News
  15. Absentee caregiver was receiving $8K a month before teen’s suicide: report – Andrew Weichel, 2017-02-06, CTV
  16. Paige’s Story Prompts Representative to Call For New Approach to Helping Vulnerable Aboriginal Girls – Office of the Representative for Children and Youth, 2014-05-14
  17. Dead boy’s dad says he’ll push for services for kids before B.C. election – Camille Bains, 2016-10-21, Vancouver Sun
  18. Kamloops ‘Wrap Force’ Fights Youth Homelessness – Katie Hyslop, 2017-01-18, TheTyee.ca
  19. B.C. minister, representative disagree on ‘aging out’ fixes – Tracy Sherlock and Lori Culbert, 01 JAN 2016, Vancouver Sun
  20. Rcy-pg-report-final.pdfPaige’s Story – Abuse, Indifference And A Young Life Discarded – B.C. Representative For Children and Youth, May 2015,
  21. Near Daily, a Child Dies or Is Hurt in Care of Province – Pieta Wooley, 2013-03-11, TheTyee.ca

 

 

CHILDREN HURT, DYING IN THE “CARE” OF THE POLITICIANS AND IS FOSTER CARE THE NEW RESIDENTIAL SCHOOLS

“Children are entitled to be protected from abuse, neglect and harm or threat of harm.” (1)

This isn’t about privacy but it is about the children. And I want to help raise awareness about how they are being treated by the government.

There has been “a number of very tragic incidents in a relatively short period of time”; (2) – Alex Gervais (3), Nick Lang (4), Carly Fraser (5), Danny Francis (6), Paige Gauchier (7)(8), Alex Malamalatabua (9)(10), and Isabella Weins (11), and others (11) (12).  You may have to go directly to the Times Colonist and Vancouver Sun’s websites to access their articles.  Also, I encourage you to read Paige’s Story, a report by the Representative’s office about “abuse, indifference and a young life discarded”. (7)(8)   “It is a startling example of a collective failure to act by multiple organizations and individuals who should have helped Paige” (7) and Ministry abused authority in case of B.C. father sexually abusing his children:  judge, Eric Rankin and Tamara Baluja, 14 Jul 2015, CBC News (JP case – “This is the very first case in Canadian history where a mother has succeeded in holding a child protection agency liable for misfeasance in public office,” Hittrich said)

In the case of Alex Gervais, 23 youth homes, with 33 children, were abruptly closed down when the Representative’s office “brought these concerns to the ministry’s director of child welfare after receiving calls from some of the young people in care”. (3) “Part of the documents also included a review of caregiver concerns from 2008 to 2014 which revealed “several ongoing themes” with caregivers including the following allegations:  Using substances, criminal offenses, inappropriate physical discipline, assault of a teen in care, viewing pornography, domestic violence between caregivers;” (3)  And concerns about unsafe living conditions that included “improper issuing of medications, a caregiver carrying a weapon, and exposure to abusive language”. (16) (43)

“Turpel-Lafond said senior ministry staff told her directly that none of the 33 displaced youth from several group homes would be moved to hotels”. (2) (Mary Ellen Turpel-Lafond, was B.C. Representative for Children and Youth)  Yet Alex Gervais was placed in a hotel with minimal supervision for 49 days, until his death. (13) The number of days Alex was in the hotel varied in reports from three to five months so it appears, initially, no one knew how long he had even been there. (2)  This hotel placement was in contravention of Ministry policy. (14)

It also became apparent that B.C. Minister of Children and Family Development Stephanie Cadieux has little or no idea what goes on in the Ministry. “She said both she and the provincial director were under the impression that no youths were being housed in hotels when Gervais died.” (15) (bolding mine)  “B.C.’s children’s minister has ordered an immediate review to determine whether there are more foster kids in hotels that senior officials don’t know about, one day after The Vancouver Sun reported a youth in foster care was living in a hotel and died when he fell out a window”. (16)
“In September, Cadieux told The Sun that 23 foster youth had been placed in hotels in the previous year”. (17)(43)  “the ministry was wrong again. In fact, 117 kids — five times its original estimate — stayed in hotels between November 2014 and October 2015”. (18)   “In fact, because some children were placed more than once in a hotel during this time frame, the total number of hotel stays was 131”. (18)  “She had no explanation Wednesday when asked why the initial number was so inaccurate”. (19)  “She later claimed it was because the information had not been properly tracked”. (20)  “NDP leader John Horgan issued a statement that accused the provincial Liberals of purposely hiding the true number of vulnerable youth they stuck in hotels, until forced to reveal the truth by Turpel-Lafond”. (18)      “According to the new report, the ministry’s ‘expectation’ is that care workers would provide constant supervision for a child during these hotel stays as well as provide opportunities to participate in recreational activities. (18) (bolding mine)

“The minister in particular and the senior ministry staff did not have a strong handle on what was going on with the residential placements of vulnerable youth in care.” (17) (29)   “Representative Mary Ellen Turpel-Lafond said it took time to have ‘difficult discussions’ with the ministry, but she is glad to be working together now to find solutions”. (17)  “It required them to make a pretty frank admission that things were not operating appropriately,” she said in an interview. (17)        So Turpel-Lafond and Cadieux prepared a joint special report. (21)   Then, “Cadieux disagreed with one of its findings, that the use of hotels reflects ‘significant shortfalls’ in other available placements, including foster homes, emergency beds and group homes” (apparently she didn’t read the report before she signed off on it). (13)  She said it was just a communications problem because beds are available. (13)  Then she changed her message again and said “Our ultimate goal is to eliminate hotel placements entirely. Government can’t do that alone however and we need more people to step up, get trained and work with us to provide kids in care with the stable homes they so desperately need and deserve”. (22)  So, apparently it isn’t a communications problem but a lack of foster parents problem.  I suspect she has set-up a scapegoat (blame the people) in case the Ministry gets caught again placing children in hotels.  You just can’t trust a politician.

Apparently, Manitoba worked over a two-year period to abolish the use of hotels for children in care by adding 55 emergency shelter beds and 114 emergency foster beds, or so they say. (19) I’m not aware this has been proven.

Cadieux said her responsibility is to set “’high level direction’ for the ministry” (as given to her by Premier Christy and her handful of people running the government – see Why I Don’t Vote – Part II), and to speak about anything that goes wrong (15), which I guess would be saying the scripted talking points she’s given.  And, of course, going for photo-ops.  “But as a minister of the Crown, she is responsible for everything her ministry does within its charter.  By attempting to evade this longstanding principle, she makes a mockery of ministerial accountability”. (23)  Can you imagine the CEO of a company saying “I had the directions written for the company to follow and I have no other responsibility as to the operation of the company.  How long do you think she/he would be employed?  Do you think parents can say they did their job by directing the writing of policies for their children to follow, but they are not responsible for whether their children follow those policies.  The Premier/Minister can delegate but it is still the Premier/Minister’s responsibility to ensure that the delegates are doing their work appropriately.

Plecas report (24)

Cadieux hired Plecas, and his team, to do a review of the J.P. Case and offer recommendations.  His review is a review of the system.  Plecas refers to it as an “independent” review but it is not.   When reading the report one has to keep in mind that  Plecas’s career was in the government (see Plecas Review, Appendix 2), and he is an  “insider” (25).  Also, coincidentally (I think not), his daughter Bobbi Plecas was moved to the Office of the Premier on July 30, 2015 just before her father was hired in August 2015. (25)(26)

He provides, what appears to be, a good summary of the Ministry’s roller-coast ride due to continual changes in direction by Deputy Minister’s. The Representative said “I was pleased to see that Mr. Plecas’s document endorses recommendations that my Office has made continually in recent years – including those calling for more funding and adequate staffing for MCFD”. (27)

However, his toadiness or bias can be seen in some of his recommendations. For example:

  1. Case-specific

“The Ministry for Children and Families said Tuesday that the review of Gervais’ death, conducted by the provincial director of child welfare, would be case-specific and not a look at systemic issues in the child welfare system”. (28) Plecas also recommended “that these cases be looked at as case-specific and not be applied universally”. (24)  If they did a very narrow review would they have noticed (much less reported):

– that the problems at these group homes had been going on for 6 years (2008 to 2014) and no one in the ministry did anything (presumably children and case workers passed this information up the chain of command) until the children went to the Representative. (3)

– what effect did this have on the other children living in these unhealthy (physically and emotionally) group homes; this was not addressed in any of the articles.

– that 117 (133 with repeat stays) children were being warehoused in hotels, with minimal supervision, contrary to policy.

– would they have noticed the Minister and senior staff had so little awareness of what was happening in the Ministry

– and would they have noticed all the larger issues, including other “gaps” in the system that even BC premier Clark had to admit existed. (28)

Looking at the specifics of the case, and not seeing if it extends to the rest of the system, is just a way of covering up management failures. It also prevents any improvements.

  1. Blame

Plecas says that no one should be laying blame until all the facts have come out. To a point I believe this is true.  Cadieux “pointed the finger at ministry staff “(15) and Clark blamed the agency (30).  But ultimately Clark and Cadieux are responsible for whatever happens in the Ministry.

Yet, Plecas wants to share victim’s (children’s) sensitive personal information with politicians so they can have a debate based on “facts”. This sounds like victim blaming.  And, let’s face it, the politicians do not have constructive debates in the Legislature.  They may have been given a briefing and questions to ask/answer.  They are not allowed to stray from their talking points.  In fact, the Legislature debate has become such a farce that even the politicians are reducing the number of days they “sit”.  And, how would sharing Alex Gervais’ personal information have made a difference; it was not about his vulnerabilities but about multiple system failures. The Ministry takes in children because they are vulnerable.  It is the Ministry’s job, not just to provide housing, but to provide the resources to heal these children’s vulnerabilities so they will leave the government care physically and mentally strong.  If a child leaves the system vulnerable or dies due to vulnerabilities this is not the child’s fault; the Ministry failed because the child is still vulnerable.

I do agree that calling for the resignation of the minister (Cadieux) isn’t constructive. After all, one useless, putrid politician will simply be replaced with another useless, putrid politician and nothing will have changed for the better.

  1. Mary Ellen Turpel-Lafond

Plecas wants to get rid of the Representative’s oversight function and he would like to do it next year (2017) when her current contract expires.   I totally disagree with this.  But I am not surprised that the government would want to get rid of her.  I’m only surprised she has lasted as long as she has.  As Plecas admits “she’s a thorn in their side and she’s suppose to be”. (24)(31)  The politicians don’t like their “mistakes” brought to light regardless of the effect on the children.  So, the problems with eliminating the Representative’s oversight function are:

  1. The politicians cannot be trusted

The politicians would much prefer to cover-up all critical injuries and deaths which show government mismanagement. For example, all the contradictory statements by Cadieux, plus her refusal to accept responsibility.  Another example, “Agreements with Young Adults (AYA) a smokescreen that is not helping these vulnerable teens”.(32)                                                            Cadieux said the Ministry has “the fewest children in care in the past 19 years” (31) but the question is why.  Is this because the children are not in danger or because the government is leaving children in family, or other, situations that are not safe?  Are they “delegating” the children to other organizations so the politicians can claim the children are no longer in “government” care?

With regard to the group homes in the Alex Gervais case, the appalling situation went on for 6 years with nothing being done until the Representative stepped in.

Cadieux also said there were 110 more social workers this year (31) but the Representative stated “that over the same time period 91 social workers quit for various reasons, including burnout, leaving just 19 new workers”. (31) So, Cadieux was trying to mislead people.

The hospital reviewed the Malamalatabua case but won’t share the report with Turpel-Lafond, citing privacy laws, saying doctors won’t speak openly in the future if they think internal reviews are shared with her office. (10)  Why?  What are they hiding?  Would they give this information to the police if the police were conducting an investigation?  I think there needs to be discussion as to what can be shared and under what circumstances regarding the children’s injuries and deaths.

  1. Plecas assumes the quality assurance program and public information system will be implemented and successful.

I find it “odd” the Plecas would suggest that everything will be fixed, and the Representative’s oversight function redundant, possibly as soon as 2017 when he stated “but twenty years after its formation the Ministry continues to struggle, not equipped for this century, and in need of repair. There clearly remains a fair distance to go”.

  1. Plecas assumes the politicians won’t decide to change things shortly after the Representative loses the oversight function.

Yet, as Mr. Plecas pointed out in his report, the politicians have a penchant for changing direction on a dime.

  1. Does anyone really think the politicians won’t try to cover-up any wrong-doings or prevent any bad publicity?

Which means the children will suffer in silence.

 

  1. Lack of Enforcement of the Child, Family and Community Service Act (CFCS Act)

“In her report Lost in the Shadows, the Representative called for the Attorney General to review the reasons for a lack of enforcement of the CFCS Act in B.C., and take steps to promote compliance, if necessary. The Representative fails to understand what action was taken at the level of the Attorney General as there has been no direct follow up on this issue since that report was issued on Feb. 6, 2014”. (8)  It again sounds like the Act is just words on paper to the politicians.

By having Turpel-Lafond, or someone of her calibre, with the current responsibilities, what could happen:

  1. If the Ministry is doing its job effectively, protecting the children, then the Representative won’t have any investigations and few recommendations.
  2. With less work, the Representative’s office could focus on other duties like advocacy.
  3. If the government starts screwing up again, the Representative would still have the mandate to do the appropriate investigation(s).
  4. The people can have some trust in the protection of the children in government care because of the oversight role of a Representative of the calibre of Turpel-Lafond.
  5. Turpel-Lafond not only exposes the mismanagement of the Ministry but provides recommendations to improve the system (help the children)

If you read any reports by the Representative’s office you will see the incredible, beneficial impact she has had on improving the care of the children but there is still lots to do.   You may also want to read “Meet the Representative” on the Office Representative for Children and Youth website which explains why she is so good at her job.

Plecas wants, instead, a ministry spokesperson “to ensure the public is informed not only of the Ministry failures but also of its successes”. Do you really think the government is going to allow one of its toady’s to advertise its failures?  If we had transparency all the time a spokesperson wouldn’t be necessary because the people would know what the ministry has been doing and the pros/cons.  This sounds like it would just be a propaganda exercise by the government.  And this would presumably “shield” the Minister and provide her/him with one less thing to do.

Al Hoolaeff, Alex Gervais’s former primary caregiver at an Abbotsford group home, “said he’d prefer for Turpel-Lafond’s office to operate at further remove from the government — more like the Independent Investigations Office of B.C., which probes incidents involving police that lead to death or injury”. (34) “It’s important that these things are investigated immediately and that any of the ministry files need to be seized immediately — just like if it was a police investigation — where they can’t be tampered with, can’t be edited,” Hoolaeff said. (34)

Plecas wants new appointees to the Representative’s position to serve only one term of six years. If they are doing a good job, or an incredible job like Turpel-Lafond, why would you replace them?  A new person would have to learn the job, learn the issues, and probably won’t see if their recommendations are implemented.  This constant turnover of personnel is part of the problem as Plecas himself pointed out in the history of the Ministry.  But perhaps if the Representative’s are good little toadies they can get another job in government after six years.

Turpel-Lafond is asking for an increase of $20 million per year. “Earlier in the day, Mary Ellen Turpel-Lafond, the representative for children and youth, urged the minister to spend $20 million more annually to hire 250 more staff, 200 of them social workers. She made the comments after releasing a report that said some B.C. child welfare offices are perilously understaffed, leading to a consistent failure to meet the provincial government’s own timelines and rules for child protection”. (35)(33)  Two editorials by the Times Colonist explain why this is needed (13, 31), plus a CBC News article (35), and Paige’s story (8); for example, front-line workers are grossly over-burdened (33) and children are being left at risk. (33) (7)  “I find it particularly concerning that, over the past four years, the proportion of MCFD’s budget that is dedicated to child protection has actually decreased in real terms, leaving alone the impacts of inflation”. (24)  “When government steps in to act as a child’s guardian and protector, it also takes on a financial burden associated with its decision”. (24)  Plus “NDP critic Doug Donaldson said the report shows, though, that the ministry under-spends its child protection budget by millions every year”. (33)  Presumably, this “savings” goes back to the politicians for other uses.

The politicians can “afford” large subsidies to the LNG companies (36), Christy’s $500,000 private jets (not including other forms of transportation such as commercial flights)(37), and hiring Christy’s “inconvenience”, Ben Stewart, to go for a prolonged stay to Asia (see Why I Don’t Vote – 4c), all on the backs of the children. The politicians could take some of that money for the children, AND/OR, they could take the $100 million Christy transferred into the prosperity fund (which is not linked to LNG revenues) and use it for the next five+ years for the children.  After all, finance minister Mike De Jong said, about transferring money into the prosperity fund, “The fact that we would take a small amount of the chequing account and transfer it into a small savings account to look ahead is a natural thing for us to do”. (38)  Well, lets look ahead and transfer it to the children.  After all, it’s just a small amount.  But, conning the people into believing LNG money has gone into the prosperity fund, for the benefit of Christy’s next election campaign, is more important than the children.

The issue is not about having the money but how it is allocated. But then, the children don’t vote, they don’t contribute to the political party fund, they don’t give out brown bags of money and they can’t hire out-of-work politicians.  The children have no value – to the politicians.

And just giving money isn’t enough. Hiring more front-line social workers isn’t enough.  You have to have systems in place to show that the money is being used effectively and efficiently.  For example, in a 2013 report, the Representative “said the province provides about $90-million a year to 23 delegated aboriginal agencies but that there has been no comprehensive assessment of how they are performing and whether they are improving outcomes”. (9)  I am also curious as to why 23 group homes were closed which affected 33 children.  Was there on average of 1.5 children per group home?

Unlike LNG, money spent on the children has a known, direct return. Studies, reports and just common sense tells us that children, most or all, that are returned to health, physically and mentally, go on to lead healthy, productive and, I suggest, mostly happy lives.  They contribute to society in a variety of ways and reduce costs in hospital, welfare, shelters, police, courts and other services. (32)   And, in many cases, these healthy children, as reported by the Representative, will raise healthy children breaking an intergenerational cycle of trauma. (8)  The returns on healthy children just keep happening, year after year, generation after generation.

Plus, the Representative says her office “needs an extra $656,000 to handle the increasing number of investigations into child injuries and deaths”. (31) “The need to do more detailed probes, she said, is the result of an ‘astronomical’ rise in the numbers of deaths and critical injuries reported to her office. She received 82 such reports this September, compared to just 28 during the same month in 2014”. (10)  “The main reason for this increase was that her office re-defined what constitutes the critical injury of a child, prompting government social workers to report more cases”. (10)  I’m sure this was necessary or the politicians would not have allowed the change in definition.   “In addition, she’s asking for $958,000 a year to boost advocacy on behalf of children and youth seeking a permanent home”. (31)  However, her budget has been frozen at $8.18 million for four years”. (34)(10)  The safety and well-being of children are the paramount considerations and these are not, relatively speaking, large sums of money.  After all, if $100 million is a small amount, then $1.6 million is miniscule. (38)

Some people are suggesting that foster care may be the new residential schools. (39) This refers to the seizure and treatment of aboriginal children.  However, what should not be ignored is this also includes the treatment of all children (aboriginal and non-aboriginal children).  Some children have, relatively speaking, positive experiences in foster care (as I have read, some did in residential schools); by that I mean they were not beaten/starved/ molested/emotionally abused, etc. while in residential school/foster care.  But many others cannot say the same.  And, can you imagine saying to your child (and the government is the parent of the children in foster care), happy 19th birthday, as you hand them garbage bags containing their belongings, and show them the door (the permanently closed door). (8)

If foster care is the modern day version of residential schools then, at least, we know where to start laying the blame, the self-serving politicians – BC Premier Christy Clark, BC Minister Stephanie Cadieux, Manitoba Premier Greg Selinger (40), Minister Kerri Irvin-Ross (see Why I Don’t Vote – Part II) and those who came before them. I think of these people as the monsters because they abuse and kill children through their indifference, their greed, and their narcissism.

The Union of BC Indian Chiefs (41) and The BC Federation of Teachers (42) are speaking up and demanding better care of the children. I can only hope the rest of the people of B.C. stand up for the children (and other provinces/territories), and, at the very least, demand more money for necessary resources, demand a better system that cares for them, demand that the Representative’s office retain its current mandate and the position of Representative be held by Mary Ellen Turpel-Lafond or someone of her calibre (not some government toady).  “Health’s  budget is protected because both of BC’s political parties know this is essential for electoral success”.(24); people need to make sure that the children’s budget is protected and not decreased in real terms, unless it can be honestly justified.  These are CHILDREN.

 

  1. When Foster Care Hurts – Pieta Wooley, 5 Jul 2013, TheTyee.ca
  2. Teen in B.C. provincial care dies in fall from hotel window – 23 Sep 2015, CBC News
  3. B.C. youth care home investigation finds unsafe conditions – Enza Uda, 08 Dec 2015, CBC News
  4. Nick Lang’s grieving parents say B.C. ministry worker ‘didn’t care’ about meth-addicted teenager – Natalie Clancy, 13 Oct 2015, CBC News
  5. Mother denied details about daughter’s case – Les Leyne, 11 Nov 2015, Times Colonist
  6. Danny Francis takes own life while in ministry care, friend says – Natalie Clancy, 03 Dec 2015, CBC News
  7. Rcy news release pg final.pdf – Paige’s Story Prompts Representative To Call For New Approach To Helping Vulnerable Aboriginal Girls – 14 May 2014, B.C. Representative For Children And Youth (News Release), BC Representative For Children and Youth website.
  8. Rcy-pg-report-final.pdf – Paige’s Story – Abuse, Indifference And A Young Life Discarded, May 2015, B.C. Representative For Children and Youth (see website)
  9. Young man dies while in care of B.C. aboriginal agency – Wendy Stueck, 03 Dec 2013, The Globe and Mail
  10. Children’s advocate wants more money to investigate youth deaths, Lori Culbert and Rob Shaw, 20 Nov 2015, Vancouver Sun (a paper I wouldn’t buy)
  11. Mother sues B.C. Ministry of Children after baby dies in foster care – Chantelle Bellerichard, 24 Mar 2015, CBC News
  12. Near Daily, a Child Dies or Is Hurt in Care of Province – Pieta Wooley, 11 Mar 2013, TheTyee.ca
  13. Editorial: Child ministry needs overhaul – 22 Jan 2016, Times Colonist
  14. Stephanie Cadieux says answers coming in death of Danny Francis, other teens – 04 Dec 2015, CBC News
  15. Teen’s death leaves Minister Stephanie Cadieux ‘angry’ policy ignored – 24 Sep 2015, CBC News
  16. B.C. children’s minister orders urgent review to see if other kids in care are stuck in hotels – Rob Shaw and Lori Culbert, 23 Sep 2015, Vancouver Sun
  17. B.C. government agencies to review foster children in hotels – Lori Culbert, 10 Nov 2015, Vancouver Sun
  18. New report shows 117 B.C. foster children were placed in hotels – Lori Culbert, 13 Jan 2016, Vancouver Sun (a paper I wouldn’t buy)
  19. 117 vulnerable youth placed in hotels, ministry says – Lindsay Kines, 13 Jan 2016, Times Colonist
  20. B.C. commits to public reports on teens placed in hotels after joint review – The Canadian Press, 13 Jan 2016, Times Colonist
  21. The Placement of Children and Youth in Care in Hotels in British Columbia – A Joint Special Report, Representative For Children And Youth, Ministry of Children and Family Development, January 2016
  22. News Release – Joint report results in action plan to reduce hotel stays as placements – 13 Jan 2016, Ministry of Children and Family Development, Representative for Children and Youth
  23. Editorial: Minister must be responsible – 05 Oct 2015, Times Colonist [please note, paragraph 5, I believe there was an entry error and “Cadieux’ death” should be “Gervais’ death”]
  24. Plecas Review, Part One: Decision Time – A review of policy, practice and legislation of child welfare in BC in relation to a judicial decision in the J.P. Case – Bob Plecas, 04 Dec 2015 (you can do an internet search or go to the Ministry of Children and Development/Ministry Reporting/Plecas Review which was on the right hand side, or go to the website and do a search)
  25. Bob Plecas is a Friend of Mine – Vaughn Palmer (updated) Bcveritas.com/index.php/2015/07 (a blog by Vaughn Palmer)
  26. B.C. cabinet shuffle puts Fassbender in Victoria amalgamation talks – 30 Jul 2015, Times Colonist
  27. representative statement-dec 14.pdf – 14 Dec 2015, B.C. Representative For Children and Youth (see website)
  28. Aboriginal agency wants broader scope for review of B.C. teen’s death – Lori Culbert and Rob Shaw, 01 Oct 2015, Vancouver Sun
  29. Dozens of foster children lodged in hotels over year – Vancouver Sun, 26 Sep 2015, Times Colonist
  30. Death of Alex Gervais sign ministry needs to reorganize, says critic – 29 Sep 2015, CBC News
  31. Editorial: Work together for the children – 21 Nov 2015, Times Colonist
  32. B.C. minister, representative disagree on ‘aging out’ fixes – Tracy Sherlock and Lori Culbert, 01 Jan 2016, Vancouver Sun
  33. Two few social workers, too many at-risk kids – Lori Culbert and Rob Shaw, 09 Oct 2015, Vancouver Sun (a paper I wouldn’t buy)
  34. Child welfare report leaves former caregiver with little hope – Bethany Lindsay, 15 Dec 2015, Vancouver Sun
  35. B.C. child protection service unsafe and in crisis: report – 08 Oct 2015, CBC News
  36. Three Wacky Accounting Numbers for LNG and Shale Gas – Andrew Nikiforuk, 29 Feb 2016, TheTyee.ca
  37. Air Christy Climbs to Half Million Dollar Mark – Bob Mackin, 25 Feb 2016, TheTyee.ca
  38. B.C. LNG prosperity fund to get $100 million, but not from LNG – 15 Feb 2016, CBC News
  39. Aboriginal Children and Child Welfare Policies – Stephanie Laskowski, 07 Jul 2014, LawNow Magazine
  40. Lack of foster spots keep Manitoba kids in jail, watchdog says – Chinta Puxley, 14 Apr 2015, The Globe and Mail
  41. Open Letter: Plecas Review Must be Withdrawn and RCY Recommendations Fully Implemented – Union of BC Indian Chiefs, 17 Dec 2015, First Nations Drum
  42. BCTF calls for children’s minister to resign after latest teen death – Tracy Sherlock, 16 Mar 2016, Vancouver Sun

 

 

 

 

 

  1. Drug use, caregivers with criminal histories in B.C. youth group homes, report alleges – Bethany Lindsay, 08 Dec 2015, Vancouver Sun (a paper I wouldn’t buy)

 

 

 

CHILDREN HURT, DYING IN CARE OF POLITICIANS

This is a very, very serious problem that I have been reading about for some time, from different sources. Mary Ellen Turpond-Lafond, one of the rare people working in government who actually work for the people, has been fighting to protect the children. She is the B.C.’s representative for children and youth. The children in the care of the “government” (the politicians), in a democracy it would be considered “our care”, are dying or being injured in truly disturbing numbers. She has been battling the politicians. The politicians either don’t care, or are incompetent, about protecting these children. But the politicians want us to vote for them so they can continue to let these children be harmed or die. THESE ARE CHILDREN. But I guess spending time at photo-ops, or trying to cover up their latest scandal or spending money on advertisements is more important. And I don’t think one party is any better than another.

I wonder how long Mary Ellen Turpond-Lafond will remain employed by the politicians (see next blog).

CH

THE CHILDREN

(bold and italics are mine)

An organization called Kids First Canada has been raising awareness of the violation of children and parent privacy rights. Information is collected and linked, from preconception to adulthood, on your children and family (in fact, it appears that the information will be collected from preconception to death). Twenty-four pages of information, on each child entering school, has been collected by the Ministry of Education using a personal education number (PEN). This information was linked to HELP (Human Early Learning Partnership). HELP is a government funded research consortium of universities. According to HELP’s, and associates, websites, it links the child’s information to their family data such as medical, birth, death, hospital, perinatal, mental health, census, pharmaceutical, school achievement, daycare, children in province’s care, stress, injury and Workers compensation board. This list is expected to increase; for example, HELP wants access to our personal income tax data, patterns of employment, time use, etc. Note that this is not information that is shared that can never be tracked back to you; it can be tracked back to you.
I understand that this is part of the Integrated Management System (see prior blog). This means that there will be thousands of access points to this information.

Until 2010 this information was collected and linked without parents consent. In 2010 this was changed from no consent to passive consent, in other words you have to sign a paper that says you don’t want you child’s information collected/shared? What if the paper gets lost, or you are busy and forget, or don’t read very well, or don’t understand what you read, etc. The schools say they will explain it to parents but I suspect they will not explain all the negatives to collecting/sharing your child’s information (as much a time as knowledge issue). If your child’s personal information ends up in the database all HELP has to say is that “they didn’t receive a signed paper”. It would be hard to prove them wrong. On the on the hand, if they must have a signed paper before collecting/sharing the information then they would have to have the paper on file to prove they received it.
Kids First Canada are asking that written parental consent be required and all information collected without parents permission be destroyed.

Some concerns:
– information is being collected without the consent of parents
– information used for purposes not identified
– “HELP has stated in media and elsewhere that names and addresses are not used. However, given that HELP obtains Personal Identification Numbers, medical numbers and postal codes, etc. names and addresses would not be needed to individually identify a person or a family.” (1)
– “Judging from the types of data being collected -i.e. perinatal records, hospital records, census, etc. – parents’ and mothers’ personal records are also linked.” (1)
– “with increased use of electronic testing in school, children’s personal beliefs, plans, opinions and experiences expressed in writing could potentially be linked.” (1)
– Will this pigeon-hole the kids, i.e. are they compliant, do they fit certain peoples expectations, are they “different”, etc.?
– Commercialization – HELP and its group has funding from organizations like the Canadian Institutes for Health Research whose mission is to “work with all partners in a concerted effort to move research from an academic setting to the marketplace”. Also from the CIHR website “CIHR is committed to facilitating the commercialization of health research in Canada in support of its overall mandate.”
– “The public has not consented to this collection of data or its use”.(1)
– Cost – we are paying a lot of money for these people to take our information and use it as they choose, sharing with those they choose, without our knowledge or consent
– The “rules” can change tomorrow without our knowledge, much less our consent.
– Security – The government has shown repeatedly that it cannot, and will not, protect the information in its care.

Just think when your children/grandchildren, nieces/nephews grow up, all their personal information will be available at the press of a button by probably just about anyone (banks, insurance companies, employers, future spouses/friends, universities, and so on). Did your children misbehave in school, did they get along with other kids, were they slow starters in school, did they have any medical issues, what is their family background, were there family problems, etc.

As Kids First Canada say “ Our children are not resources to be mined through schools at huge public expense while many parents struggle to pay for basics”. And neither are we adults.

It is not a question of whether all this information, linked to each person, will be “accessed” but how fast. We were told our medical information was confidential, to be shared only with those directly involved in our medical care, only to find out that it is shared with doctors, hospitals, clinics, pharmacies, their suppliers, researchers (and apparently lots of other people/organizations – who go to the “business office” and plug their computers into the database); and that information is now going to be linked to government ministries and I am sure the list will expand; all without our consent (and in most cases – our knowledge). The government just took the information. And once it’s “out there”, it’s “out there”. You don’t get it back. The people who have this information will know more about you, and your family, than you know about yourself and your family; and they will use it for their own gain.

Some other databases they could link with include the police database. Apparently they’ve been keeping information even on law-abiding citizens (2). And, of course, the Smart Meter. Just think of the information those graphs would provide – the time you get up, the time you go to bed, whether you work out of home, if you go out in the evening and which nights, if you go on holidays and when, have family/friends over for the holidays, and much more.

And, as has been shown, once the government has your information, they can change the rules (laws) at anytime, without consulting us – unless we make that illegal. If you want our personal information, get our written permission.

We have a right to privacy. We have a right to control our own personal information. The politicians, and their friends, are repeatedly violating that right.

Here is some additional information from HELP, Population Data BC’s and Edudata Canada’s websites:

HELP’S website states “HELP’s leading edge research has resulted in British Columbia being the first and only jurisdiction in the world to monitor the development of young children as they enter kindergarten at a population level.” – versus person-specific?????

“Researcher access to data will be approved by the Data Steward for a holding using a harmonized Research Agreement process through Population Data BC. Named programmers have access to Identifiers to perform linkages on intake only. Content Data are stored on a separate server, and are accessed by named programmers to perform Research Extracts as defined through a Research Agreement. In no cases are Content Data and Identifiers brought back together. This separation of information safeguards the privacy of personal information. “ (HELP)

If you have all the personal information of an individual, I doubt it would take much to “connect the dots”. A person lives in a particular postal code, has x number family members, is x age, etc. And, as Kids First say: “this is a false assurance of privacy as names are not needed when personal numbers are used.” Plus, there will be numerous “links” to all these other databases, and the more links, the greater the likelihood that this “separate server” with all your information,with your identifier number, will be accessed. How hard would it be to track, or intercept, a link? We also know that government people have accessed individual’s information in violation of the law when it suited their agenda (The Veteran’s affair for example) The Data Stewards are the government ministries and public agencies (but they don’t seem to list them all), nor are the agreements shown.

As noted above in one sentence they say that “separation of data safeguards …your privacy” then later admits that your data isn’t safe by saying “Risk of exposure is significantly lower than that of most Data Providers as we separate Identifiers from Content Data”. So, they do admit that there is a risk of exposure, they just don’t say how high a risk (and I’d want proof, not just words). By the way, HELP is looking for a part-time privacy officer whose duties will involve “addressing breach response management” – application deadline – April 19, 2011. Nothing like being prepared with the right excuse to explain why your very personal, confidential, information was shared with the world.

“HELP partner, Population Data BC, offers the research community access to one of the world’s largest collections of health care, health services and population health care data; “Population Data BC offers qualified researchers access to a rich source of linkable, person specific, but de-identified data on British Columbia’s four million residents, in many cases from 1985 forward. Current data holdings include health care and health service records, population and demographic data and occupational data. Population Data BC continues to expand its data holdings and is working to bring in datasets from education, early childhood development, work place, and the environment”. Who are these researchers? Are they people from supplier/pharmaceutical/other businesses (many foreign companies subject to the Patriot Act) and how is the information being used?
“The Canadian Education Data Network (Edudata Canada) is developing user-friendly educational research databases from British Columbia and elsewhere. The mission is to create an infrastructure that makes K-12 education data available to researchers, policy makers and other qualified individuals and organizations, subject to privacy and confidentiality guidelines”. Now they say that in addition to sharing with researchers, they will also share with government & “others”. Also, when they say education data it sounds like they are sharing school grades when, in fact, it includes much more.
How can we monitor Population Data BC’s use of the data to ensure it is being used as contractually agreed upon?
All usage of the data will be regulated by an Information Sharing Agreement with the data provider which will outline how the provider can monitor the use of the data on an individual basis. This will include regular reports and is outlined further in Population Data BC’s Audit Policy. Again this tells us absolutely nothing since we won’t know what is in the contract, how they are being monitored or if Population Data BC is upfront about any violations. And no mention of independent audits. In fact, their audit policy is not on their website. And, as we know from the Auditor General’s audit of the hospital database, the data provider wasn’t monitoring the use/disposal of the data they had shared, so why would we believe that hundreds or thousands of other data providers will monitor the data they share..
CYDTRU – Child and Youth Developmental Trajectories Research Unit – “an emerging research unit within HELP is developing a program of research that will track children’s development over time” “…utilizing linkable health, child development (school readiness), education, community resource and socio-demographic data. These databases will enable research projects that can trace individual developmental trajectories (anonymized) from conception to high school leaving, across various facets of the health, social and educational systems for all children in B.C.” “CYDTRU researchers are working in collaboration to identify and create additional data sets that will enhance the current stock of trajectories data… – …to develop and expand the number of population-based person-specific databases and to conduct research projects.” In other words, they are planning to collect even more information on us. As long as there are links back to the person it is not anonymous.
“The BCLHD (BC Linked Health Database) infrastructure brings together person-specific, population-based, longitudinal* data across a broad range of health and societal factors from the late 1980s onwards. The BCLD is one of only a small number of resources in the world where longitudinal research on an entire population can be conducted”. I guess other countries respect their peoples privacy, their peoples rights. Also note that they say entire population, not just children.
For more information you can contact www.kidsfirstcanada.org, www.earlylearning.ubc.ca, http://www.popdata.bc.ca/; www.edudata,edu.ubc.ca, www.soeh.ubc.ca

* a longitudinal study is a correlational research study that involves repeated observations of the same items over long periods of time – often decades. Longitudinal studies track the same people. – Wikipedia

(1) Kids First Canada
(2) Office of the Information & Privacy Commissioner for BC (OIPC), March 25, 2011, Commissioner Shares BC Civil Liberties Concerns Over Information

NEWBORN BLOOD SAMPLES

In BC, a lawsuit is now underway, after it was discovered that about 800,000 newborn blood samples, together with names and birth dates, had been stored on information cards since 1999, in a storage facility operated by a private contractor; and the blood samples had been shared with researchers – WITHOUT THE PARENTS KNOWLEDGE, MUCH LESS THEIR CONSENT. (1)

CONCERNS:
1. This is, in fact, a DNA database. “DNA is your personal signature, and it uniquely identifies us” (Jennifer Puck, University of California, San Francisco) (5)
2. These spots are being shared with researchers, without the parents knowing who the researchers are, who they work for, what kind of research they are doing, to whom they subcontract, etc.
3. Bill 11, passed in May 4, 2010, gives the Minister of Health power to collect, gather, use and share personal information without any notice to or consent from affected individuals.. In other words, your personal information can be shared with governmental and law enforcement agencies, without notice or consent. The B.C. Civil Liberties Association (BCCLA) is trying to have this reversed. (7)
4. The information may be used to discriminate against the individuals by employers, banks, insurance companies, your child’s future spouse, etc. “You could make inferences about their future health, about their future behaviour, and if you got samples from their parents or a DNA databank, you can make inferences about family relationships.” (4)
5. The DNA also provides information on other family members (8)
6. The researchers/private companies may manipulate, alter or splice the DNA. (3)
7. The amount of information that can be obtained from DNA is expected to increase (8)
8. The genetic information could be used for unethical purposes such as human cloning,etc.(5)
9. De-identified blood samples are linked to personal information and you can trace the link. The blood samples are stored with a code number in one place that can be easily matched to names stored in another place. (4)
10. The blood samples and other information could be accessed by pharmaceutical and biotechnology companies, commercial companies who might bias or manipulate research findings. (10)
11. “The dark side is the commercial value of the human body. If the nature of the specifics of a given individual is available to the people searching for organ matches, the finding of a match might be someone who is not dead. Yet. (Ultra Bob) (5)
12. How securely is access controlled or is it like our hospitals, where audits have shown that almost anyone could access information. It has also been suggested that there isn’t any system, no matter how good, that can’t be abused and “once it’s out there, it’s out there” (10) And it’s not just hackers that are a concern but employees with, for example, a flashdrive which can be put into a database to download information.
13. Conflict of interest – “…Just look at the conflict of interest statement in any pharmacogenomics journal today and you will find that the head of each of the major studies and a select group of investigators, funded by public tax payers money from NIH, and YOUR DNA, are going to make huge profits from royalties and huge salaries these physicians-researchers earn because they control proprietary samples that are otherwise hard to come by. Just by tying a SNP to a treatment outcome or diagnostic outcome, there are big profits in the healthcare business to be made; with no real innovation! Hence, one wonders about the real motivation underlying collection of blood samples with consent and especially without consent – a cure or a profit!” (11)
14. Ownership – Who owns the specimens and anything created from the specimens. (10)
15. Cost – It apparently costs quite a lot to store the blood samples in the right climatic environment. Is this how you want our health care dollars spent? (3)

Medical people certainly had lots of opportunity to tell people and ask for their consent. They verbally explained why the “heel prick” (taking a newborn’s blood) was important for testing for diseases, they handed out pamphlets, and there was a website. But apparently not one person in the medical field, in over 800,000 births, mentioned that the children’s blood was being stored indefinitely and used by others. Apparently no one in the medical field thought people would be interested in knowing the bloodspots were being stored and shared (or so they say), despite the fact that this had become an issue worldwide. (2)

In 2002, the public forced South Carolina to pass a law regulating the collection, storage, and use of blood samples. (9)
In Texas a lawsuit was settled when the state agreed to destroy the stored blood spots. New legislation requires parental consent and allows parents to opt out and all projects must also be published on the agency’s newborn screening website. However, a second lawsuit has been filed because they (the plaintiffs) had not been told, during the first lawsuit, despite asking numerous times, that the blood spots had been sold, traded and bartered. (13)
Blood spot samples apparently were also sent to the U.S. Department of Defense and Homeland Security. The U.S. Department of Defense, who were using the blood samples to build an international database, reportedly destroyed the samples (of course, you never really know, do you???). (13)(6)

A Dublin hospital has stored the DNA of all the people born in the country since 1984, creating a database. This was done without the individual’s or parents knowledge, and apparently in contravention of the law; and despite having an ethics committee. (14)

Now that this issue about the children’s blood spots has been brought into the open by the public, the BC Newborn Screenings Program has a notification on its website regarding storage. But, of course, it only mentions the positive and not the negative aspects of storing the blood samples. It allows parents to fill out and submit a form requesting the destruction of the blood spot (opt out), as opposed to being asked for their written permission to store/use the blood spot (opt in). It seems that the blood spot cannot be stored unless the parent agrees to it being used by others.
What happens if your form gets “lost”. The medical/researcher people could say they never received it. It would be hard to prove them wrong. On the other hand, if they must have a signed paper before storing/sharing the blood samples/name/DOB then they would have to have the paper on file to prove they have a legal right to store/share the blood samples.

So what happens to everyone else’s health samples. For example, when you go for a physical or an operation and blood/tissue samples are taken, are they being stored somewhere? What else has the medical/political people decided we don’t need to know.

Some comments that I thought were particularly interesting:
Researcher | 10:11 a.m. Feb. 9, 2010
“I have worked in research for over 10 years. My job is to make sure that everyone obeys the law. When it comes to human research, the law is designed to protect the people who are the subject of research. Blood and tissue samples are your property even after they have been removed from your body, and researcher(s) can only do with them what they have gained your legal consent to do. That is the issue here. These researcher(s) do not have legal consent to do what they are doing. So many researchers feel like this is a hindrance. They would prefer to just be able to do whatever they want. They all think that what they are doing is for the greater good. If it is going to produce valuable results, it can and should be done legally. If you don’t think these regulations are necessary, do an internet search on the Nuremberg Code, the Tuskeegee experiment, etc. Whether you care what happens to your child’s samples or not, it is in everyone’s best interest that researchers are forced to be accountable for what they do, and gain the proper consent. “(5) In BC, the politicians have taken the right to give legal consent, to decide what happens to your body parts, from you and given it to themselves.

“It’s fine and good to say these can’t be identified, but how real is that?” said Hank Greely, a Stanford University bioethicist. “Just because you don’t have a name or Social Security number doesn’t mean you can’t identify it. Once we start using DNA for more and more things like regular medical records, somebody could do a cross-check and say whose blood it is.” (12)
One: Telling people that their biospecimens are retained and used for important research, that strict privacy and confidentiality protections are in place, and that “we’re good stewards” of the biospecimens without providing accessible, clear information about those policies, fails to meet even minimum standards of transparency.
Two: Failure to acknowledge that public attitudes and values about consent, genetic research, and privacy/confidentiality may conflict with those of researchers and policymakers can lead to public distrust of biospecimen research and impede important research.
Three: Genuine public engagement in developing policies for biobanking initiatives takes time and resources. But the payoff – trust in the research enterprise and willingness to provide biospecimens – is worth the effort. (9)

IT’S YOUR DNA AND IT DOESN’T GET ANY MORE PERSONAL THAN THAT. (Michelle Salas)

1. The Globe & Mail, May 11, 2010, Jane Armstrong, Vancouver Parent Challenges Unauthorized Archiving Of Infant’s Genetic Blueprint
2. CBC News, May 12, 2010, Scott Applewhite, Storing B.C. Babies’ blood violates privacy: group
3. Infowars Ireland, February 8, 2010, Newborns’ DNA Routinely Harvested For Government Bio Banks
4. In the Media, February 26, 2009, Barbara Sowell, DNA Testing Without Parental Consent?
5. Deseret News, February 8, 2010, Lauran Neergaard, Blood tests of newborns stirring major ethics debate
6. American-Statesman, May 10,2010, Mary Ann Roser, State agency swaps babies’ blood for supplies
7. British Columbia Civil Liberties Association, May 12, 2010, New law may create largest DNA database in Canada
8. Statement of Claim filed with the Supreme Court of Canada, May 14, 2010, British Columbia Civil Liberties Association website www.bccla.org
9. The Hastings Centre Report, September 8, 2009, Karen J. Maschke, Disputes over Research with Residual Newborn Screening Blood Specimens
10. Exploring existing and deliberated community perspectives of newborn screening: informing the development of state and national policy standards in newborn screening and the use of dried blood spots; Ian Muchamore, Luke Morphett and Kristine Barlow-Stewart, December 13, 2006
11. The Scientist – Magazine of the Life Sciences, December 23, 2009, Consent issues nix blood samples, Anonymous poster – Non-Profit banking of DNA from blood for Profit
12. Washington Post, June 30, 2009, Rob Stein, Newborns’ Blood Samples Are Used for Research Without Parents’ Consent
13. Infowars Ireland, NaturalNews, February 20, 2010, Ethan A. Huff, Texas ordered to destroy five million blood samples illegally taken from babies without consent
14. Sunday Times, December 27, 2009, TJ McIntyre, “Is Temple Street Hospital Holding A De Facto National DNA Database