GENETIC TESTS

So, what happens to the genetic tests that are done on you, with or without your knowledge/permission [see future posts “My Story” and “Information Collected (or Not)].

Besides going to researchers (and probably the pharmaceutical companies they are associated with), it may go to insurance companies, employers, banks, marketing companies and probably a whole lot of other “people”. And this is just the start.

“Canada’s privacy watchdog is urging insurance companies and others to stop asking for access to the results of existing genetic tests.”

Federal Privacy Commissioner Daniel Therrien says it is becoming more of a challenge to protect people’s genetic privacy with recent advances in science and technology.

‘We are calling on the industry to refrain from asking for existing test results to assess insurance risk until the industry can clearly show that these tests are necessary and effective in assessing risk.’  Therrien said in a statement Thursday.

There are now hundreds of tests to help spot genes known to increase a person’s risk of certain medical conditions.

But some people may decline tests for fear a positive result may mean they could face discrimination from insurance companies or their employers.. (1)

There are currently no laws in Canada that specifically prohibit genetic discrimination.”

Declining the tests, of course, assumes the people are given an option and the tests are not just done, without the people’s knowledge/real consent, from blood and other samples collected by the medical business.

And what will happen when they “open the door to an era of personalized medicine,” where treatments are tailored to specific genetic characteristics. (2) How many other people/organizations will have access to our very, very personal information such as marketers, suppliers, banks, insurance companies, employers, other countries (who many disallow you into their country), etc.?

How much discrimination will the people face based on our specific genetic characteristics? Will they be denied having children?  Will they be denied certain health care, jobs, etc.  Will they be targeted for experimentation (with or without their knowledge)?  And the list of possible discrimination goes on…

We have no idea what’s going on and how it will affect us. It seems like a free-for-all with our information/body parts.  And once it’s out there, you don’t get it back.  And we have no idea what’s going on in the medical/government business.

The turdits, and their friends in the medical/government business, won’t/can’t protect our information and, instead, share it with all the ghouls even when there are laws prohibiting it (see all past/future posts) and, of course, in cases like genetic tests they don’t even bother with laws. That would be working in the interests of the people and gawd forbid that should happen.

 

  1. Insurers asked to stop seeking access to results of genetic tests – The Canadian Press, 11 July 2014, Metro
  2. Hospital launches legal challenge to patents on genes – Andre Picard, 4 Nov 2014, The Globe and Mail

 

ANOTHER MAJOR PRIVACY BREACH IN B.C.

Since 2010, a total of 4,420 government privacy breaches have been reported to the Office of the Chief Information Officer in B.C. That’s almost a thousand “breaches” a year. (1)  And, it only includes those reported.   The privacy commissioner’s office has “looked into some 500 privacy breaches of one kind or another involving government and its agencies over the past five years”. (9)  And again, it includes only those reported which are a very small fraction of the total “breaches” because government agencies are not required to report “breaches”.

Now, more information has been “lost” by the B.C. government. This time the education ministry  “lost” “personal information for 3.4 million B.C. and Yukon students and B.C. teachers from 1986 and 2009.   The hard drives included names, addresses, genders, birth dates and education identity numbers, teacher retirement plans, substance abuse information, mental health issues, psychological assessments, plus detailed family data, social, type of schooling, grade information, graduation status, financial aid data, and designations such as ESL and special needs, economic and education status of cancer victims and children in provincial foster care and health and behaviour issues for children in care.  (1)(2)(5)(7)  “It also included family troubles and police interventions……, letters from members of the public with specific complaints about teachers; particulars on some 1,000 cancer survivors who took part in a lengthy research trial”. (9) This information was NOT anonymous.  All information could be connected to people’s names. (8)

Why does the education ministry have information going back 30 years? The teacher retirement plans was a survey done in 2003 so the older information pertains to the children.  Isn’t there a time limit on how long the government can keep information on students and children in care.  Oh right, this is the B.C. government that keeps all information on citizens for ever.

The hard drive was discovered missing in August 2015 but the hard drive “could have been missing for as long as five years”. (4)  The ministry had been trying to track it down since early August and didn’t notify the Technology Minister Amrik Virk until around September 11, 2015.

Again, the privacy commissioner’s office listed numerous ways in which the education ministry failed to provide adequate security and provided recommendations to improve security. (1) This is the same list/recommendations as identified in previous “breaches” and, no doubt, it will be the same list/recommendations as identified in future “breaches”.  I suspect the privacy commissioner’s office keeps a copy of this list of inadequate security measures and recommendations that it just reprints for each new “breach’  because nothing changes.

The Technology Minister Amrik Virk called the “breach” “low risk” because there is no indication of fraud and identity theft. (5) What a “convenient” statement.  Apparently, the ministry has done comprehensive searches by up to 50 bureaucrats, and “they had looked in every box, in every desk, in every drawer, and they weren’t able to find it” (6), but the ministry still considers the possibility of theft to be “low”.  And, the warehouse was not equipped to secure information. (6)  Plus, when the statement was made, the ministry had not examined the potential risk to individuals or notified them. (5)  The use of the information by others may not be as obvious as identity theft.  Personal information is very valuable these days.  Based on what I’ve read, companies are building large personal information databases.  This information can be used by the company and/or sold to marketers, insurance, banks, future employers, etc. so the people whose information went “missing” may never know that they lost a job, a bank loan, insurance and so on because of the information the companies were/are able to access.  This “loss” of information could haunt these people for the rest of their lives.

And, as the privacy commissioner’s office noted: the information could cause emotional hurt, humiliation or damage to reputation, if in the wrong hands.   “I think it essential to emphasize that the affected individuals are some of the most vulnerable in our society.  They include children in care, children in custody, children with special needs, and children with health conditions. These are all circumstances that can lead to stigmatization by society in general and instances of individual discrimination.” (1)

The privacy commissioner’s office “interviewed some 16 individuals, including current and former employees. But ‘owing to the passage of time, the testimony was, understandably, often vague, incomplete or inconsistent.’ Coupled with the lack of documentation — another common occurrence with this government — she was unable to place blame on any particular individuals”. (9) So, again, no one will be held accountable.

Education Minister Mike Bernier said: “We sincerely apologize for any inconvenience this incident may have caused people” (italics mine).  Could you trivialize the matter more?  My goodness, did the government drop someone’s pen?

But just ask the B.C. government, including medical people, and they will tell you that your information is protected.

“The incident prompted the Government Communications and Public Engagement office to write a 16-page script of anticipated questions and suggested answers for politicians.” (1) So the hand puppets and toadies just regurgitate the scripted answers.

The scripted answers also state that the trend of reported “breaches” was increasing through 2014, but has since begun to decline. Other possibilities:

  1. This is a scripted answer by government so is likely a lie. See post “Our Information is Not Protected – Part I” for example(s) of how government lies.
  2. The government may just be covering up more “breaches” and not reporting them.
  3. When you are “losing” information on millions of B.C. citizens at one time, what’s left to “breach” that isn’t already out there? Again, see post “Our Information is Not Protected – Part I” where the government “illegally shared” information on 4 to 5 million B.C. citizens.

And, of course, they promise everything will be fixed so citizen’s information is protected. Until the next time!!  Because they lie!!

My question is: Is there any information left, on the people of B.C., held by the B.C. government, that hasn’t been illegally shared or “lost”??

 

 

 

 

 

  1. Education Ministry Chastised for Latest BC Data Breach – Bob Mackin, 29 JAN 2016, TheTyee.ca

 

  1. Ministry of Education failed to protect personal information involving missing portable hard drive – Dissent, 28 JAN 2016, Office of Inadequate Security

 

  1. Investigation Report F16-01, Ministry of Education, 28 JAN 2016, The Privacy Commissioner’s office; CanLII Cite: 2015 BCIPC No. 65; Quicklaw Cite: [2015] B.C.I.P.C.D. No. 65

 

  1. B.C. ministry broke rules, leading to data breach: Privacy commissioner – The Canadian Press, 28 JAN 2016, The Globe and Mail,

 

  1. B.C. education data breach: government can’t find unencrypted hard drive – 15 Sep 2015, CBC

 

  1. B.C. Education Ministry Slammed For Losing Hard Drive With Students’ Personal Info – Tamsyn Burgmann, 28 JAN 2016, The Canadian Press

 

  1. B.C. ministry broke rules, leading to data breach: Privacy commissioner – The Canadian Press, 28 JAN 2016, The Globe and Mail

 

  1. Largest data breach in B.C. could have been “completely preventable’: watchdog report – Paula Baker, 28 JAN 2016, Global News (this is actually the 2nd largest see , see post “Our Information is Not Protected – Part I” where the government “illegally shared” information on 4 to 5 million B.C. citizens.

 

  1. Privacy breach a failure of ‘executive leadership,’ watchdog says – Vaughn Palmer, 28 JAN 2016, Vancouver Sun (a paper I never bought)

 

10. B.C. student data breach could affect more than 3 million people – Amy Judd, 22 SEP 2015, Global News

RIGHT TO KNOW WEEK

When I was in B.C. I attended a “right to know week” talk at the library. A woman who represented the library introduced someone from the Privacy Commissioner’s Office, someone from the police department and another person.  These three people then gave their talk.  Basically, the Privacy Commissioner’s Office and the police department talked about how wonderful they were.  It was all one-sided; there was no one on the dais to disagree with anything they said.

But the audience had an opportunity for questions and comments. Most were directed at the Privacy Commissioner’s office.  The first at the microphone was a gentleman.  Just after he started talking he was interrupted by the woman from the library, who yelled at him comments like “who cares what you think”, “who cares what you have to say” and so on.  He had the microphone and she had no right to speak.  When she was finally finished, the gentleman continued with his comments/questions as if she hadn’t spoken.  I admired his patience and fortitude.  I sat in the audience, astounded by this woman from the library, and said nothing.  I should have spoke up but I didn’t.  I would now.

A couple rows behind the microphone sat three women in the last three seats of the row. They ridiculed the people who were speaking at the microphone.   I didn’t get the impression that these women just walked off the street and thought it would be fun to listen to the speeches and then heckle the people in the audience who spoke.  It looked planned.   I, and I’m sure others, gave them dirty looks.  Finally, they left.  But again, I should have spoke up but I didn’t.  I would now.

It seems that you have the right to know, as long as it is what the government and their toadies want you to know (otherwise known as propaganda).

Lack of Independence

Mary Carlson was Executive Director of the Office of the Information and Privacy Commissioner for B.C. She then became Deputy Registrar of the Office of the Registrar of Lobbyists for British Columbia.  The privacy commissioner’s office is suppose to operate independent of the politicians, both provincially and federally.  But, I don’t believe you can operate independently if your next job depends on being “liked” by the politicians.  It’s all smoke and mirrors.

David Loukidelis was the B.C. information commissioner before he accepted the post of deputy attorney-general. As Vaughn Palmer pointed out, by bringing him in-house they silenced a critic (in some areas), at a convenient time and turned the critic into a lap-dog. (Sabotage? Or merely incompetence?, Vaughn Palmer, 25 Jan 2010, View from the Edge).

PLOYS (or TACTICS)

(Also read prior posts “Assault” July 22, 2010, “Security Guards, August 8, 2009, ‘Threats” September 4, 2008)

I include this post because I think people should know what happens, in Canada, when they exercise free speech against the government. You will be threatened (life, limb, family, job…), intimidated and harassed, plus they will attempt to demean you, and will use diversionary tactics when they can’t prove that what is being said is false. I don’t say this to scare people off, to prevent them from speaking the truth, quite the opposite.  It is only when more voices speak out that these threats against our rights, our democracy, our lives, will stop.

Someone told me at the beginning of my time in front of St. Paul’s Hospital that the degree to which they try to intimidate, harass and threaten you is a reflection of how close you are to the bulls-eye. I thank the person for the comment because it helped me over the years to withstand the abuse.

A man, while professing to agree with my handout, claimed that he did not buy into conspiracy theories. I find the use of the words “conspiracy” and “paranoia” very manipulative.  If you want to demean someone and try to shut someone up those words are usually used.  My response to this man was that since the politicians, and the catholic/medical business, refuse to tell us with whom they are sharing our information and how it is being used then obviously something unethical and morally illegal is going on. These questions are so straight forward there shouldn’t even be an issue about answering them honestly.  So, until possibilities are proven to happen or not to happen, anything is possible.  I try to keep an open mind to all possibilities.

They also tried the “I’m your friend” tactic. They would pretend they agree with what you are doing, act as if they are on your side so they can collect information on you and try to manipulate you.  For example, a guy came up to me and said he was a doctor, agreed with everything I was saying, knew information was going all over the place, and so on.  By now I had given up talking to medical people because my experience was that they just lie, con, and harass.  But he knew information was going all over the place, and did I know what they were doing now so I was interested, he caught me.  As I listened to what they were doing now I heard him talk about medical personnel and how they had to get immunized and a list was posted showing who was and who wasn’t immunized, etc.  So he talked about the medical personnel, not the patients.  All he seemed to care about was his own self-interest, not the patients.  Then he said, what I believe was the real message, “everyone that walks by thinks you are striking, everyone who walks by thinks you are crazy, you can’t accomplish anything”, and so on.  What I found interesting in his comments was:

  1. His assumption that he knows what everyone who walks by is thinking.
  2. People thought I was striking and thought I was crazy. I think that says more about him and the rest of the medical personnel than me.
  3. If I wasn’t accomplishing anything then the medical system wouldn’t have people like him constantly trying to persuade me to “go away”.

I don’t mind people debating the issue(s) or telling me I’m wrong if they can prove it. But these people have no facts, evidence or rational argument to dispute what I say so they attack the messenger, not the message.  In fact, I would have loved to have had it proven that I was wrong.  But my own experience, investigations such as the auditor general’s, and breach after breach proves otherwise.  Actually I think they should change the word breach to a flood.  When everyone’s information is being shared that is no longer just a breach.  (see post Auditor General – PARIS report – 5/24/2010 and post Our Privacy Is Not Protected – Parts I and II – 12/27/2015 and 12/29/2015)

A man, walking by while I was at St. Paul’s Hospital, told me that if I pushed this issue too far “they” would put me in a padded room and then only god could help me.  I wouldn’t have been surprised because that’s our so-called democracy.

When I first stood in front of St. Paul’s Hospital it was mostly men who came to “talk” to me. Some would try to be my friend, some would make comments like “looking for a date”. I wondered if they were using a typical government tactic that I call the “pimping tactic”.  If a woman isn’t happy in her job (or whatever) just get her a man (or a second one) and get her F(well, you know the word) and she’ll be fine.  That didn’t work so after a while, they sent the women to “talk” to me.  That didn’t work either so it must have confused the hell out of their small minds.  The women sometimes even had “handlers”.  Example, a woman came to “talk” to me.  Realizing that she was from the hospital I turned and walked away.  When I turned around again I saw her ask, through gestures and voice, a male, standing on the steps of St. Paul’s Hospital, what to do next.  He told her to come back to the hospital.  When he saw me watching he weakly smiled and shrugged.                                                                                                                                                                                             I was at a public talk and the speaker said that they didn’t want anyone to be in the room who didn’t support public health care.  I got the impression that it was directed at me and possibly a few other people.  Some people have tried to claim that by raising awareness of what the medical system is doing that I am supporting private health care.  That was another ploy to try to make me go away, to discredit me.  I don’t support private health care and I have no doubt that their privacy issues are as bad or worse than the public sector.  You could look at the medical system like a child.  A child wants what it wants and will throw a tantrum to get it.  If you want that child to grow/evolve into a decent human being/institution then it has to learn morals, ethics, integrity, caring, compassion, accountability, transparency and that it does not pick on those more vulnerable (only cowards do that).  And, of course, a child/institution does not learn better behaviour if you ignore, or support, their wrong-doings.  Its people who don’t care about the public health system who ignore/support their bad behaviour.  Of course, those working in or running the catholic/medical system are adults but, apparently, they still need to be taught the values we want the institution to reflect.  They do have a bad influence, the politicians, so this will be difficult.

It was obvious I had been researched. They would tell me information, that was suppose to be private, in a variety of areas non-medical.  I assume the purpose was to intimidate me, as in ‘see we can access any information on you we want’.  Example, I had responded, years ago, to a request for comments, by the government, on the privatization of Canada Post.  The comment was suppose to be confidential.  At St. Paul’s Hospital, a person had approached me at the same time as another person, but supposedly independently, yet both asked questions, for whatever reason, about my views on the U.S.   As one of them was leaving, she had her back to me, then turned her head around and gave me a knowing look and, out of the blue, said that Canada Post would be privatized (this had not been part of our previous conversation).  So I guess that’s a done deal although maybe not with Trudeau “in power”.*   But I don’t think her comment was about Canada Post per se but about letting me know they had access to this confidential information.  I was raising awareness that our privacy was being violated and they thought they could scare me away by continuously proving that I was right.  Strange people!

I was threatened, intimidated, assaulted… and not just in front of St. Paul’s Hospital but I encountered this in the other areas of my life. This is just one example of the many things that happened, someone left a “gift” on my doorstep which I turned over to the police.  I could take it because I believed in the necessity and importance of what I was doing.  I actually found it fascinating, in a macabre way.  I knew that it wasn’t about me but it spoke volumes about them.  These are people who couldn’t refute what I was saying.  So, instead they pulled every underhanded trick they could to make me go away.  And this from people who claim to be caring, compassionate and democratic.  I would stand there and wonder, my gawd, what are they doing to us that they have to go to such lengths to hide it.  So, instead of scaring me away, they make me realize how important it was that I stay and raise awareness.

They said, and did, anything that they thought would intimidate me or embarrass or demean me. What they thought would embarrass/demean me was really a reflection of THEIR discriminations.  It certainly told me a lot of what they thought of certain segments of the population.  I wondered how these segments of the population were treated as patients (actually, I did find out a little bit -see “My Story”).

I reached a point where I thought they couldn’t shock me anymore and then they would do something that would shock me. Finally, I realized that I can’t think as low as they can sink.  So each time they pull something that is even lower than usual I am shocked.

I had already planned on leaving B.C. for a variety of reasons such as the continual violation of privacy. I didn’t want to be sold/traded/bartered.  So my illness didn’t scare me away but it did move the agenda up a bit (see future post “My Story”).

It certainly appears they have been trying to find something to hang me with, to blackmail me into going away. Since I haven’t totally disappeared I’m sure they will keep trying.  It’s what they do to hide things.  But who/what I am doesn’t matter, whether I’m evil or a bloody saint, what matters is whether the information I give out is true.  And that is easy enough for people to determine besides the sources I provide.  Ask the health system exactly who they share your information with, and the purpose, and when they won’t give you a real answer, ask yourself why.  What information does the medical system collect on you, why, and is it necessary for your specific health concern?  If they want information for any other purpose, why don’t they let you know and ask your permission?  And, of course, there are the continual scandals proving that our information is not being protected.

You do have to use common sense when you ask them questions. When I was in front of St. Paul’s Hospital a person told me that she had asked the medical staff about whether her privacy was protected.  And they said it was protected.  Well, what did she think they would say?  Seriously, to assume that the medical staff would admit that her information wasn’t protected, was being shared all over the place, was farcical.  You have to get any answers in writing or, otherwise, tell them to prove it because they lie, as all the evidence proves.

*An aside – After I moved I contacted Canada Post regarding an issue with mail forwarding. I was told that, before they would look into the issue, I would have to give them my phone number or email address because they don’t communicate by mail.  I read an article in the Globe and Mail titled Canada Post Head Makes Big Bet on his ‘winning horse’ , by Barrie McKenna, May 25, 2015, in which CEO Deepak Chopra chastised Canadians for not using mail.  I wrote to the CEO Deepak Chopra about my issue and his hypocrisy.  I received a response by mail.  Was he selected as CEO to ensure Canada Post’s privatization?

 

 

 

January 27, 2016

 

SELF-ENTITLED

 

 

The Charter of Rights and Freedoms – Fundamental Rights:

 

Section 15.

 

  1. Every individual is equal before and under the law and has the right to the equal protection and equal benefit of the law without discrimination   (1)

 

The privacy act is a legal document.

 

Yet, the medical business has a two-tiered system, those who have the right to privacy (those with a sense of self-entitlement) and those who do not, those who are sold/traded/bartered/experimented on and those who are not.  The self-entitled people, as selected by the medical business, have rights the rest of the citizens do not.  The self-entitled people include medical personnel.  That’s one of the reasons they don’t care about our rights because their rights are protected.

 

And isn’t it called discrimination when one group has privileges that is denied to another group.

 

I believe the two-tiered system, giving some people rights and privileges denied to others, is a violation of the Charter of Rights and Freedoms, a violation of the law, a violation of our fundamental rights. But, as we know, the medical business/government do not care about the rights of most citizens or the law.

 

 

Elites, Upper/Lower Class

 

I often hear/read the terms elites, upper/middle/lower class which imply that some people are better than others, that some people are “inferior”. It usually is used relative to money and power.  I would hope people would find new words because some people are NOT better than others.  For example, a person gains a lot of money by brown-bagging (Brian Mulroney, and others, were accused of this), and other unscrupulous means vs a person who wins a lottery and gives it away, not because they have a lot of money but they have enough and others do not.  Who would you consider the better person, the elite, the upper class?  I would hope that people would start using specific terms like the 1%, or people with more money or people with political control.

 

Sometimes the terms are used in relation to someone who is well-educated in political science or mathematics, etc. but who knows little or nothing about growing food, building a house, or social work and so on.   So who is “more important” or is neither and each is simply educated in a particular area (school and/or self educated).

 

This also applies to the concept of social status; for example, doctors are usually considered to have a higher “social status” again due to money and the “job title”.

 

I find these terms arrogant, manipulative, a form of brainwashing, as well as archaic, baggage from the past that should be left behind. If the terms social status, elites, etc. referred to people with values such as morals, ethics, integrity they might be appropriate..  But they don’t.  So – Let’s evolve and get rid of them.

SELF-ENTITLED

The Charter of Rights and Freedoms – Fundamental Rights:

Section 15.

  1. Every individual is equal before and under the law and has the right to the equal protection and equal benefit of the law without discrimination   (1)

The privacy act is a legal document.

Yet, the medical business has a two-tiered system, those who have the right to privacy (those with a sense of self-entitlement) and those who do not, those who are sold/traded/bartered/experimented on and those who are not.  The self-entitled people, as selected by the medical business, have rights the rest of the citizens do not.  The self-entitled people include medical personnel.  That’s one of the reasons they don’t care about our rights because their rights are protected.

And isn’t it called discrimination when one group has privileges that is denied to another group.

I believe the two-tiered system, giving some people rights and privileges denied to others, is a violation of the Charter of Rights and Freedoms, a violation of the law, a violation of our fundamental rights. But, as we know, the medical business/government do not care about the rights of most citizens or the law.

Elites, Upper/Lower Class

I often hear/read the terms elites, upper/middle/lower class which imply that some people are better than others, that some people are “inferior”. It usually is used relative to money and power.  I would hope people would find new words because some people are NOT better than others.  For example, a person gains a lot of money by brown-bagging (Brian Mulroney, and others, were accused of this), and other unscrupulous means vs a person who wins a lottery and gives it away, not because they have a lot of money but they have enough and others do not.  Who would you consider the better person, the elite, the upper class?  I would hope that people would start using specific terms like the 1%, or people with more money or people with political control.

Sometimes the terms are used in relation to someone who is well-educated in political science or mathematics, etc. but who knows little or nothing about growing food, building a house, or social work and so on.   So who is “more important” or is neither and each is simply educated in a particular area (school and/or self educated).

This also applies to the concept of social status; for example, doctors are usually considered to have a higher “social status” again due to money and the “job title”.

I find these terms arrogant, manipulative, a form of brainwashing, as well as archaic baggage from the past that should be left behind. If the terms social status, elites, etc. referred to people with values such as morals, ethics, integrity they might be appropriate..  But they don’t.  So – Let’s evolve and get rid of them.
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